I forgot. Or rather, it slipped my mind. My boys are 9 and 10 now, with large motor skills mastered. They have also been on Immune Tolerance Therapy for years to keep their inhibitors down. They don’t remember when they had ankle and wrist bleeds. Those traumatic days are gone like Bing Bong from Inside Out. My memories are better, but the risks for daily bleeds are no longer in the front of my brain.
And so, I forgot to remind my girlfriend of this when my youngest joined friends for a trip to WonderWorks to the world’s largest suspended indoor ropes course. My fear was of food allergies. I assumed Brody would be aware of his hemophilia. He gets medicine every other day through his port ad infinitum for Pete’s sake.
Participating on the ropes, even the SkyTykes for little kids, requires strict safety measures. But my boy, the hemo, fell and was caught by the harness. Trying to right himself he banged his shin on a metal bar. By the time he came home he had an active bleed. He was clueless as to why this ‘bruise’ hurt so badly. We’ve never limited activities. Medicine days are a regular part of our lives and yet, somehow vigilance went by the wayside. It dawned on me that our med regime that makes him a ‘normal’ kid prevented him from connecting this injury to his bleeding disorder.
With young hemos this might seem impossible. Just be mindful to keep the knowledge fresh. Instead of sadness it would be good to know that nothing will get in the way of a little one’s joy.